the art of parenting while sick
Find community.
Get resources.
Learn new techniques and tools.
“Thank you for making me feel part of something bigger. I get so scared feeling alone with this.” -Kerry
More than a billion parents have a chronic health condition.
1 in 10
children is growing up in a household with a parent with a chronic condition.
80%
of hospital admissions are patients with chronic conditions.
500+
conditions can cause medical emergencies such as anaphylaxis; hypoglycemia; a seizure; a thyroid , adrenal, or sickle cell crisis; an asthma attack; pancreatitis, and more.
And yet…
there are almost no resources for parents on how to manage unexpected flare ups, hospitalizations, medical emergencies, or surgeries while being the best parent possible.
Get the scripts, tools, and tips you need.
Many chronic conditions such as kidney disease, diabetes, COPD, hepatitis, endometriosis, celiac disease, epilepsy, severe asthma, sickle cell anemia, rhematoid arthritis, lupus, Crohn’s, Parkinson’s, Addison’s, Grave’s, multiple sclerosis, myasthenia gravis, and more can be unpredictable and, at times, debilitating. That’s why you need:
Scripts for talking to your children and support network about
- a new condition, flare-up, or worsening condition
- unexpected hospitalizations
- medical emergencies
- how family, friends, neighbors, teachers, and coaches can support you in times of need
Tools for helping your family adapt to your condition
- ideas for activities to do with children of all ages on days when you’re stuck at home
- household guidelines to help you avoid triggers and reduce stress
- tips for how to respond if your child’s behavior changes due to a new condition, unexpected hospitalization, or if they witness a medical emergency
Tips for caring for yourself
- techniques for handling the six big emotions that come along with chronic health conditions–guilt, grief, anger, anxiety, shame, and fear
- strategies for planning for your short- and long-term future including socializing, travel, family planning, and more
- tips for getting the most out of your doctor appointments
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Stay tuned for updates on the book and classes.
HILARY HODGE 